Hospital

Seemed to be here all day today, nothing serious just appointments but even they can drag out the day especially when there's no access to one side of the hospital so you have to take a big walk around to the other side.

Harper had his eye check up today and the ophthalmologist is happy with his vision and thinks that he has inherited his dads eye problem of it turning in when hes tired and trying to focus. She wants to do a full eye examination which requires drops and screening but thats all the info i got on what they'll exactly do, she said it takes around 2 hours!! 

They want to check everything so they have a complete picture not just what they're seeing, she doubts he'll need anything but possibly a weak pair of glasses for a few years.

Kanye had his neurology appointment in the afternoon, his neurologist gave him a full check up and said that he hasn't gained any weight since 6 months ago so wants him to keep up with supplemented milk drinks. 

Were going to keep track of his seizures once hes fully weaned off one of his four meds and see how he goes. There was a lot more info he gave me and we talked a while about various things -aspirating, breathing issues, types of seizures, how he is being affected etc.

The pharmacy close to us are so good, they know us so well that they now stock more of his medications for when i come in with a new script which nearly needs 2 pages!

So a long day but a great day for getting these things done, its been a while since i blipped, we've had a lot going on and ive been a bit stressed but now its all calmed temporarily so i can breathe again and feel human.