gennepher

By gennepher

Long Day...

Nighttime Wildlife video
Badger looking around...
38secs
https://youtube.com/shorts/qShz3z5ZoGQ?si=cfyEfraXjJGukvoB

Creative...afraid it is my ferns in a kaleidoscope today in Laboscope
Because it was my asthma yearly review this morning, and when I got back, I crashed asleep for the afternoon.
Asthma nurse kept talking to me when she was facing away from me on her computer or washing her hands etc. I had explained when I went in that I needed her to face me when talking, and I pointed to my lipreading badge on my chest. "Please face me I lipread". And gave her my card, which she didn't read even though I asked her.

But more than 10 times I had to pull her up, because as she talked she faced away from me again. My mind cannot comprehend this, and I pull her up again..."I just reminded you I need to see your face to lipread". She looked darkly at me as she turned around, "I said you were doing very well".
I do not have a clue what she was referring to...doing very well at what? So I ask her. "Your weight", she replied. "What about my weight?" I ask. "You've lost weight," she replies.

She doesn't offer the information. So, I ask her, how much weight have I lost. Something kilograms, she replies. "I am sorry" I told her, "but I cannot lipread numbers, could you please write it down for me?"

She then shouts (thinking I will lipread shouting better) at me, "TWO STONES". And carries on shouting, "ISN'T THAT GOOD". I repeat the words 2 stones to make sure I have it correct, (I always have to repeat back numbers, and because she said it differently this time), "You said, 2 stones, have I got that right ?", and she looks at me with an even further darkened face, as though she was dealing with an imbecile. (By this time, I do not care one jot that I have lost 2 stones). Presumably she had been telling me this information initially while she was washing her hands and facing the wall.

Then she faces her computer, and is either muttering at it, or talking to me. I have been told off for asking if they were talking to me, when they were facing the computer, because I needed to see their lips to lipread, and I was told very abruptly to keep quiet.

The asthma nurse stops muttering at the computer, she had been going through many different pages and highlighting in different colours, and turns to me, "Well, which?" she asks. I tell her yet again for the umpteenth time, "I lipread, (and I pointed to the badge,again on my chest which says please face me I lipread) yet you talk to the wall (while washing her hands etc), and having conversations with your computer....but not facing me so I can lipread. If I don't see you are talking, I don't know you are even talking to me".

Her face couldn't have got any darker, "I was asking you if you wanted to have your diabetic review now, with me, or in a month's time with J...".

She had been muttering to her computer over 10 mins, and I am guessing now, writing this, that she had been relating stuff to me on my diabetes and I have not received one jot of that information so I am in the dark about that, so I said, next month with J. I have no idea who J is.

She literally ran to the other side of her room, grabbed her tea/coffee mug and ran to their tea room...and I left and went to bed absolutely shattered.

I hope you had a good day.

I am tired, my day has been wasted with utter stupidity of others who should know better.

Have a good night's sleep...

EDIT I wear a Sunflower Lanyard which is a worldwide lanyard for people with disabilities , especially hidden disabilities as deafness,
And I wear this badge I made (the middle badge of the 3 in extras).
And I gave her the card I made (again in extras) which I always give to appointments I have) and say please will you read this, it will help you and me.
I made this card 10 years ago.Most people will read it, but not all and just toss it to the side of the table as this nurse did.

I am thinking it is about time I make a new card, possibly a little more aggressive/assertive/something that makes it abundantly clear, that unless you (the asthma nurse in this case), that unless you face me (I am a very good lip reader by the way), I stop this appointment now and ask for the practice manager NOW.
This all happened last year with the practice nurses (different ones), where they did not face me when speaking and I had to ask repeatedly, please face me when speaking.

And I also had a letter from the cochlear hospital explaining some of my limitations even with the cochlear sound processor,which is very prominently on the side of my head as my hair is tied up..

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