What happens?

When you mix a pop up tent with a 9 year old...

Yep a tent up in the hall way... And one very happy little girl.

She is currently going through a raiders of the lost ark stage so today she was playing in her tent, indoors (and out) wearing s leather hat a lot, refusing to let me go over her pet ants in the yard when I escaped for 5 mins... I tried to convince her that they like talc to eat but she didn't believe me.... And this evening I sent her to bed with 'scouting for boys' but she wants the girls addition.. --- I am also a bit unsure about some of the advice in there but hey....

After an incredibly rough weekend when I sent carers home after refusing care and being very fed up the OT came put today to sort stuff out. We seem to have a good relationship but that might just be the mutual background and frustration at the local lack of comprehension by so many people.

Wrexham wheelchair service are being difficult over my chair refusing to come out to do a home assessment although OT and GP requested one instead just sending out a standard chair.. Which won't be any use hopefully my OT is going to be able to convince them otherwise but she said she isn't managing to when she speaks to them. I might have to get my advocate involved in yet another complaint!

Apparently they are also refusing me an electric wheelchair because I don't sit out enough. I don't have anything suitable to sit in... That's why we want an electric wheelchair for me... Idiots!

Never mind going to keep fighting...

In the mean time my little family is doing well and for that I am eternally grateful.