Family day

I woke up feeling a lot better than yesterday, wish it could have been the same for Kanye. When he woke up he was teary and grumpy, it wasn't like him so Andre and I decided to put his head gear on, we were right to do that, 30 minutes later he had a seizure and fell, 20 minutes after that he had another. We gave him his meds and let him sleep, he came round and seemed better but didn't know what to do with himself so cried and sat in Andres arms like a baby, we put him back to bed and he slept for an hour or so.

We had organised with my mum that he would stay the night at hers just to give us a break and even though he was having seizures we still took him. Whether he was at our house or mums he would still have them and still sleep a lot.

After we left we found there was a fair by the beach so we went to have a look. Andre and Mar got ice cream while I bounced Harper to sleep in the front pack. We had a great time. There was a big bouncy slide and we bought Mar a blow up pirate sword, we walked down towards the beach and there were big kites flying in the sky, one was a whale, one was a sting ray it was pretty cool.

We got some lunch and headed back to the car as Harper was waking and needed a feed.

On our way home we stopped and bought some fireworks, guy fawkes falls on a school night and being summer it's really late before it's dark, well late for the boys anyway.

So after a late dinner Andre and Mar let off some fireworks, Andre said Marleys eyes lit up. It was nice for Mar to have alone time with us and to do something fun like other normal boys do, with Kanye things like today are difficult as he doesn't cope, there's no looking around at things, he can't go on rides because of his epilepsy and any out of routine bed time results in a meltdown. So it was nice to have family time. And it was a beautiful day.