Just another day

I am unbelievably tired. I'm at the stage of wanting andre to take the day off so I can sleep. I think the last few weeks of chicken pox, seizures and miserable kids has got to me. There's 3 days left of term and I just want the older 2 to be both at school so I can just have a day, just one day. I love them but I really need alone time even if harper is home he sleeps for 2 hours in the day. I feel bad for feeling this way but I've given these kids everything i have for weeks and I want a break. I need one so I have energy to give them in the holidays not that they're usually energetic during that time they're usually on the couch zoned out tired watching a movie they've seen lots of times. I do take them out though once they're past this stage. I think this is why I have never put them in a holiday programme is because they actually need the time to have a break and just do things on our own terms when they have energy.

Harper is on the mend though he slept really well last night, he woke up happy, has been eating again and just back to his regular self. I've missed him.

Kanye had seizures all night, andre and I kept waking when he had one making sure he was in recovery or on his side. He had vacant ones all day and was exhausted.

The neurology nurse called me today after speaking to her yesterday, she had talked to the neurologist and he wants to again up Kanyes meds well just one by 12.5mg. Currently he's on 100mg twice a day of topiramate along with 3 other meds. To do this i have to cut up using a tablet cutter a 50mg tablet into quarters and add a quarter to his regular night time 100mg. I'm alright with it the last time we upped his topiramate it spread his seizures out from 3 weeks apart to 5 weeks. I think he is sick at the moment though which will be affecting him.

I'm going to see how he is overnight as to whether i send him.

Marley got his mid year report yesterday and he's meeting expectation for all aspects of the curriculum!! I sound surprised but I'm not, not really, I knew he was doing well but it's always nice to see a graph explaining where they are and the next goals. His writing was just above below expectation and I know it's the part he hates most about school so I think I'll try work with him during the holidays even if it's just colouring it's all good for his fine motor development. We have parent teacher interviews tomorrow night, I booked ours for 545 but it's going to be freezing! !! We're meant to take mar with us but that means taking Kanye and harper too so if it's nasty out i might see if someone can watch them. The interview is only 15 mins anyway.

Mar tonight cried and cried about random things like missing his friend santa, and saying he doesn't want a present. When he's like this he's exhausted. He's rundown too he's getting a cold sore. I'm kind of pleased it's holidays he needs a break.

I caught this today of the two watching little Einsteins. Beautiful boys.