Fibromyalgia, Frustration and Crowdfunding
This week has been very stressful and exhausting with higher pain days after my lower pain day on Monday.
My fatigue has been better. I have tried to alleviate my pain levels with stress with short, paced walks for gentle exercise.
I feel very frustrated that I spend a great deal of time on the phone with health appointments and trying to sort out administrative blunders not of my own making.
There’s a severe lack of compassion which I struggle with as I am of the opposite personality, I have always been more of a giver than a taker too.
I have had my Community Care Grant for a washing machine and other essential items that I need refused and it’s all admin and bureaucracy. I intend to appeal against the decision to the Ombudsman and am seeking advice.
I decided this afternoon to set up a crowdfunding and intend to donate the money to Fibromyalgia Action UK and Asthma and Lung UK if my appeal is successful. Fingers crossed it is but I am losing hope about luck this year - I can’t wait for 2024. This has been one of the most challenging years of my life and I consider myself very resilient.
Today’s Blip is of one of my old notebooks as no paced walking today and forgot to Blip something more interesting!
Please support me if you can, any donation would be much appreciated:
https://email.gofundme.com/ls/click?upn=McCelgEyxf19hZNOeSlreCCInWE2d0jWmwr3kAwo6N4-3DEpcU_NQSrStcOXr28F6VPd5dpMZMU9sqa1mFbGihmyut4wRWR0VsXKUXxO3VpgdliHb73f0Um4b970ngVcewQM2UDRbygNu9lswRC0OE8CtMQ5ng-2BeYC5hFqKqHMcUtu3dv1XBom61fxKeM1mSyZZ-2Bu-2BuIvrJBJA3MtIZU8eXFn02H29tDiMdTqGs0vuiFkBhPbqHzhAADfEubN51gl8TZKpszQdKN2UYGfyP-2FN0VAz25BcOyU2SSpOhOI9aY3AaNrBpDE-2Fnfjgb8IG84lXgJixc5wA-3D-3D
I will catch up with journals tomorrow :) xx
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